Every year, June 19 is observed as World Sickle Cell Day – a day dedicated to raising global awareness of Sickle Cell Disease (SCD), a hereditary blood disorder that affects millions around the world, particularly people of African descent.
It’s a day for education, advocacy, and hope. But this year, as we continue conversations around healthcare access, research funding, and stigma reduction, there’s something else we need to talk about: language.
The Problem with “Sickler”
In many parts of the world; especially in African communities; the word “sickler” is commonly used to describe people living with sickle cell disease. On the surface, it may seem harmless, even convenient. But for many who live with SCD, the term is deeply offensive.
It reduces a person to their condition. It strips away identity and reinforces a narrow, negative stereotype: that they are always sick, weak, and fragile. It’s a label that disregards the humanity, resilience, and complexity of the individuals behind the condition.
Let’s be clear: Sickle cell disease is a chronic medical condition, not a personality type. And the people who live with it are far more than their diagnosis.
Words Matter
Language is not just about communication—it’s about dignity. The way we talk about people shapes how we see them, and how they see themselves.
Instead of saying “sickler,” let’s use person-first language:
• “Person living with sickle cell disease”
• “Sickle cell warrior” (a term proudly embraced within the community)
These alternatives honour the individual first. They reflect strength, not suffering. They communicate humanity, not pity.
For people who wake up every day to pain, fatigue, and countless hospital visits, not to mention the stigma, they deserve to be spoken about with respect.
What Is Sickle Cell Disease?
Sickle cell disease is a genetic blood disorder in which red blood cells; typically round and flexible; take on a stiff, sickle shape. These distorted cells can block blood flow, leading to intense pain, organ damage, infections, and chronic fatigue.
In Ghana alone, it’s estimated that 15,000 babies are born with SCD each year. Despite how common it is, understanding and empathy remain limited. Access to quality healthcare is inconsistent. And misinformation still fuels stigma.
This is why World Sickle Cell Day exists. When the United Nations officially recognised it in 2008, it was more than a gesture, it was a call to action. A call to go beyond awareness, and toward action, policy, and compassion.
Time to Change the Narrative
As we commemorate this year’s World Sickle Cell Day, let’s reflect, not only on scientific breakthroughs or healthcare policy, but on the everyday words we use.
You might not be a policymaker or a doctor. But you have a voice. And how you speak about others matters. Whether it’s in casual conversation, on social media, or in the news, choose your words with intention.
Drop “sickler.”
Say “warrior.”
Say “person living with SCD.”
Say something that affirms, not diminishes.
Because for those living with sickle cell disease, every day is a battle; not just against pain or fatigue, but against judgement, silence, and misunderstanding.
The very least we can do is to speak with care.
WRITTEN BY NII KWEIKUMA
